GCDTR Data Repository
Georgia Center for Diabetes Translation Research Data Repository
Our mission is to empower equitable diabetes research. Aimed at facilitating practice, program, and policy research, we leverage local, regional, and national databases to enhance decision-making for diabetes prevention and management. Our data paints a comprehensive picture of disease burden, healthcare costs, utilization, and more. Our commitment to health equity drives research to improve outcomes for all. Explore our repository, collaborate, and join us in making a difference in diabetes research and health equity.
GDCDTR Data Repository Advancement & Incentive Program
Members of the Georgia Center for Diabetes Translation Research have the opportunity to access a $1,500 grant aimed at supporting their research and covering publication costs. This grant opportunity aims to support researchers who can effectively translate their findings into manuscripts using the resources provided by the GCDTR Data Repository. We aim to foster collaboration, disseminate research, and improve public health outcomes. If you’ve recently published a manuscript, we encourage you to seize this funding opportunity to extend the impact of your work to a broader audience.
Use the search functionality below to filter resources by category. To select multiple options within a category, please select one option and CTRL + CLICK to select additional options.
| Data Registry | Description | Coverage | Description of Cohort |
|---|---|---|---|
| American College of Cardiology (ACC) Pinnacle | Cardiac outpatient registry | National | Patients with coronary artery disease, hypertension, heart failure or atrial fibrillation |
| American College of Surgeons (ACS) National Surgical Quality Improvement (NSQIP) | Pre and postoperative data registry | National | Patient-level, aggregate data on all surgical procedures reported to ACS NSQIP |
| American Heart Association (AHA) Mission: Life Line | Inpatient cardiac registry | National | ST-elevation myocardial infarction (STEMI) patients taken to the hospital by EMS |
| American College of Cardiology (ACC) National Cardiovascular Data Registry (NCDR) | National cardiovascular data registry; inpatient and outpatient | National | High risk STEMI/NSTEMI patients,Afib patients, CathPCI patients, ICD patients, CHD patients, LAAO patients, PVI patients, TVT patients |
| American Hospital Association (AHA) Annual Hospital Survey | Hospital Survey | National | Serial cross-sectional study of 6500 United States hospitals. The AHA reports approximately an 85% response rate to the survey each year. For those hospitals not responding in a given year, statistical models are used to estimate a number of key variables. Flags indicate estimated variables. The presence of facilities and services is not estimated. Information is available on the estimation methods used. It is possible to obtain historical data from prior years as well. |
| Atlanta Veterans Affairs (VA) Medical Center | Clinical records; insured population | State/Local | Veterans and their dependents across the state of Georgia |
| Behavioral Risk Factor Surveillance System (BRFSS) | Community-level cross-sectional health survey | National | Done across all 50 states + DC and 3 territories |
| CARES (Cardiac Arrest Registry to Enhance Survival) | Out-of-hospital cardiac arrest Registry | National | Patients who have non-traumatic out of hospital cardiac arrest, patients pulseless on 911 arrival, pulseless in presence of 911 responder, patients who have a pulse after 911 arrival following defibrillation |
| CDC Wonder | Wide-ranging Online Data for Epidemiologic Research | National | Patients reported with AIDS, Live Births |
| Census (American Community Survey) | Neighborhood-level cross-sectional census survey | National | Entire U.S. population |
| Centers for Medicare and Medicaid Services (CMS) | Clinical records; Medicare & Medicaid | National | Varies |
| Cerner CoPath Cancer Registry | Cancer pathology registry | National | All patients with breast cancer, colon, cancer, leukemia, prostate, myelodysplastic syndrome among participating Cerner sites |
| Children’s Healthcare of Atlanta (CHOA) | Clinical records; Childrens healthcare of Atlanta | State/Local | |
| Commission on Cancer Registry | All patients with malignant neoplastic diseases | National | All patients with malignant neoplastic diseases |
| Crosswalk for ICD-9-CM to/from ICD-10-CM for General Equivalence Mappings | US mortality data | National | US mortality data 1969-2020, cause-specific deaths, by age, sex, race (black, white, other), geography (county) |
| Dialysis Facility Compare (DFC) | Dialysis facility characteristics | National | All Medicare-certified dialysis facilities in the United States |
| Dialysis Facility Report (DFR) | Dialysis facility characteristics | National | All Medicare-certified dialysis facilities in the United States |
| Emory Healthcare | Inpatient clinical data; Emory Healthcare | Local | Unique Patients Treated Annually in Emory Healthcare |
| Georgia Death Data | Georgia mortality data | State of GA, 2018-2021 | State-level data based on death certificates of Georgians. Available for linkage (includes identifiers) |
| Georgia SEER Registry | State-level cancer registry; Georgia | State/Region | Incident diagnosed cancer patients in the state of Georgia |
| Get with the Guidelines (GWTF) Heart Failure Registry | Heart Failure Registry | National | Patients with heart failure |
| GHA Discharge Data | Georgia inpatient and outpatient claims data | State | All inpatient and outpatient claims across all GA hospitals |
| Grady Health System | Inpatient clinical data; Grady Health System | State | Patient Visits Each Year |
| GWTG/Coverdell Stroke Registry | Stroke registry | State/Local | Patients with ischemic stroke and transient ischemic attack at 66 participating hospitals in Georgia |
| Healthcare Cost and Utilization Project, Nationwide Emergency Department Sample (HCUP NEDS) | Nationwide emergency department sample; admission-level data | National/State | In 2016, patients visiting hospital-owned emergency departments in 37 states + D.C. (number of participating states varies by year) |
| Healthcare Cost and Utilization Project, Nationwide Inpatient Sample (HCUP NIS) | Nationwide inpatient sample; admission-level data | National/State | in 2016, Hospitalized Patients from 46 states + D.C. (Number of participating states may vary by year) |
| Healthcare Cost and Utilization Project, Nationwide Readmissions Database (HCUP NRD) | Nationwide readmissions sample; patient level | National/State | Patients re-admitted after hopsital discharge |
| Healthcare Cost and Utilization Project, State Ambulatory Surgery and Services Databases (HCUP SASD) | State Ambulatory Surgery and Services Databases | National/State | Patients are from 35 states that have collected encounter-level data for ambulatory surgeries and may also include various types of outpatient services. All SASD include data from hospital-owned ambulatory surgery facilities. Some States include data from nonhospital-owned facilities. |
| Healthcare Cost and Utilization Project, State Emergency Department Databases (HCUP SEDD) | State-level emergency department database | National/State | Patients from 42 participating states that visited a hospital-owned emergency department, are discharged but not admitted. |
| Healthcare Cost and Utilization Project, State Inpatient Databases (HCUP SID) | State-level inpatient database | National/State | 97 percent of all U.S. community hospital discharges. Some States include discharges from specialty facilities, such as acute psychiatric hospitals. |
| Healthcare Cost and Utilization Project, State Inpatient Databases (HCUP SID) | Longitudinal interview panel study; adults over 50 | National | Nationally representative sample of patients by age cohort: AHEAD study, before merge with HRS in 1998: Patients born before 1924 (age 70+ in 1997) Children of the Depression (b. 1924 - 1930) War Babies (b. 1942-1947) Early Baby Boomers (b. 1948 - 1953) Mid Baby Boomers (b. 1954 - 1959) Late Baby Boomers (b. 1960 - 1964) |
| Inter Macs Registry (Interagency Registry for Mechanically Assisted Circulatory Support) | Registry for Mechanically Assisted Circulatory Support | National | Patients who receive an FDA-approved mechanical circulatory support device to treat advanced heart failure |
| Joint Arthroplasty Registry (American Joint Replacement Registry) | Joint Arthroplasty Registry | National | Patients with primary knee replacement, primary hip replacement, revision hip, revision knee, hemiarthoplasty, hip resurfacing |
| Kaiser Permanente Georgia (KPGA) | Clinical data; insured population | State | All patients who have received care from Kaiser Permanente in Georgia and filed insurance claims |
| MarketScan | Claims databases, specialty databases and linked data sets; insured population | National | The study population includes all patients enrolled in insurance plans included in the MarketScan CCAE, including carrier and other care files |
| Medicare Current Beneficiaries Survey | Longtidunal survey; nationally representative; Medicare population | National | Nationally representative sample of Medicare beneficiaries |
| Metabolic and Bariatric Surgery Accreditation and Quality Improvement Program (MBSAQIP) | Metabolic and Bariatric Surgery Data Registry | National | Metabolic and bariatric cases reported by MBSAQIP sites |
| Morehouse Primary Care Network | Clinical data; primary care network | State/Region | Community Physcian's Network (Partnership between Morehouse and affiliated physicians) |
| National Anesthesia Clinical Outcomes Registry (NACOR) | National Anesthesia Clinical Outcomes Registry | National | All anesthesia cases reported to NACOR |
| National Bureau of Economic Research – Crosswalk for ICD-9-CM to/from ICD-10-CM for General Equivalence Mappings | Crosswalk for ICD-9-CM to/from ICD-10-CM for General Equivalence Mappings | National | Just for reference between ICD-9 and 10 diagnosis codes |
| National Neurosurgery Quality Outcomes Database (N2QOD) | National Neurosurgery Quality Outcomes Database | National | Patients identified by neurogsurgeons. Potential participants are identified from the weekly-posted Operating Room schedule, and the first six who meet the criteria are enrolled per week. |
| National Center for Health Statistics US mortality data | US mortality data | National | Patients are selected to represent the U.S. population of all ages. These persons are located in counties across the country, 15 of which are visited each year. |
| National Health Interview Survey (NHIS) | Cross-sectional interview survey | National | Civilian noninstitutionalized US population. Includes residents of households and noninstitutional group quarters. Persons excluded from the universe are those with no fixed household address, active duty military personnel and civilians living on military bases, persons in long-term care institutions, persons in correctional facilities, and U.S. nationals living in foreign countries. |
| National Health and Nutrition Examination Survey (NHANES) | Cross-sectional health survey; includes biomed data | National | Patients are selected to represent the U.S. population of all ages. These persons are located in counties across the country, 15 of which are visited each year. |
| RADPeer – American College of Radiology | Physician-level radiology data | National | Routine imaging patients by radiologist/radiology group/institution; Cases by age (adult vs pediatric) |
| Rural-Urban Commuting Area Codes (RUCA) | Residential classification system | National | All US counties |
| Scientific Registry of Transplant Recipients (SRTR) | Scientific Registry of Transplant Recipients | National | All solid organ transplant candidates, donors, and recipients in the United States (kidney, pancreas, intenstine, hearth and lung transplant) |
| Society of Thoracic Surgeons (STS) National Database | Adult Cardiac Surgery Database | National | Adult Cardiac Surgery Patients, General Thoracic surgery patients, congenital cardiac malformation patients and patients who receive mechanical circulatory support device |
| State Health Practices Database for Research (SHPDR) | State-level Health Practice Database | National/State | All 50 States + District of Columbia |
| United Network for Organ Sharing (UNOS) | Waitlisting, transplant, and organ donor registry | National | All waitlisting, organ donation and transplant events occurring in the United States |
| United States Renal Data System (USRDS) | End-stage kidney disease registry | National | All incident ESRD patients in the United States |
| Vascular Quality Initiative (VQI) | Vascular procedure registry | National | Patients with carotid artery stent, carotid endarterectomy, Endovascular AAA repair, Open AAA repair, Hemodialysis access, Inferior Vena Cava Filter, Infra-Inguinal Bypass, Supra-Inguinal Bypass, Lower extremity amputation, peripheral vascular intervention, thoracic and complex EVAR, Varicose Vein |
| Vermont Oxford Network- DB | Voluntary registry for very low birth weight infants and neonatal intensive care admissions | National | Very LDW database: infants with birth weights of 401 to 1500 grams or between 22 weeks 0 days and 29 weeks 6 days gestational age who are born alive at member centers or are admitted to them within 28 days of birth without first having gone home Expanded database: all infants in the Very Low Birth Weight Database as well as infants over 1500 grams who are admitted to a NICU at a member center or who die at any location in the center within 28 days of birth without first having gone home. |
| Veteran Affairs (VA) | Clinical data; insured population | National | US Veterans and their dependents, from 1,255 facilities, and 9 million veterans |
| Veterans Health Administration Corporate Data Warehouse (CDW) | Clinical data; insured population | National | All veterans receiving care from a Veterans Health Administration care site |
| Veterans Health Administration Corporate Data Warehouse (CDW) | Claims data; Medicaid | Southeast US; National | |
| Veterans Health Administration Corporate Data Warehouse (CDW) | Longitudinal cohort; young adults with diabetes | State/Region | There are more than 20,000 study participants representing all different racial and ethnic backgrounds who have helped SEARCH determine the extent of diabetes in the community and its impact on different populations. |